Sunday, February 14, 2010

Protein results from Froedtert

We have heard back from the two protein tests that were sent out to Case Western Reserve University. One of the tests is called 14-3-3, when elevated amounts of the 14-3-3 protein are found in the cerebrospinal fluid of a patient it is a detection of CJD (Cruetzfeldt- Jakobd disease) However, this test result came back "ambiguous" or in other words inconclusive.
The other protein test is called the Tau protein test. The result that came back from that test is positive. The amount of protein that is considered to be a positive result in a person was found to be double that amount in Brian's cerebrospinal fluid. Therefore, because of the ambiguous result found in the 14-3-3 protein test and the positive result in the Tau protein test the average between the two that Case Western reported was 51% positive for CJD.
We are still waiting to hear from the UCSF Memory and Aging Center wear they specialize in CJD in what they say to a possible diagnosis in CJD. Thank you so much for all your prayers, comments and support. Brian and all of the family are so lucky to have such a great caring support system with all of you! As usual... we will keep you posted when we know more.

6 comments:

  1. Hey guys, Jason Ellis, we're all praying and thinking of you all often. I have you on several churches prayer lists and we keep hope alive for a miracle. Love you guys and blessings to you!

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  2. We are dismayed at the results of the tests that Brian has undergone but not defeated. We will never stop praying for his recovery and for all of his dedicated family members.
    Ed and Cheryl

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  3. Please, Please watch this: Doug Kaufmann speaking about CJD, Prions, etc... on Tuesdays show...
    http://knowthecause.com/WatchTheShow/tabid/55/Default.aspx

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  4. Watch News and Views on Tuesday's show...Very Important Information!!!

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  5. Just found out the status from my mom this morning, I want you to know I'm praying for you all!! I love you guys!! Please let me know if there is anything I can do to help with anything.
    love you all,
    Michelle Card

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  6. Lynne,
    Craig has a doctor appointment on Thursday (18th)at Froedert 12:45 p.m. If possible we would like to talk to you. We understand we cannot see Brian, and that's okay. Hope we can at least meet up and talk to you. Call me if this is possible.
    Christina AKA "Mamma Doo"

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