Brian's own website

Hello all,
We had an amazing turn out for the visitation last night. Thank you, thank you all for waiting in the line to come and see the family! Brian is SO LOVED and it's such an amazing testimony to how many people's lives Brian touched.
A friend of the family Jason Ellis made a website for Brian and we would like you to check it out. He also put the slide show that he made for us on it too! We are so blessed to have him know what to do and voluntarily help us out with all of this. Please check out: www.brianwillms.org
This website and the blog is were we will most likely update about a future motorcycle ride that we would also like to do for Brian.
We love you all!

Brian Robert “Bubba” Willms

Brian Robert “Bubba” Willms, 51, of Kenosha, WI died on Friday, February 19, 2010, at Froedtert Hospital, Milwaukee, WI surrounded by his family

He was born January 27, 1959 in Lake Forest, Illinois, grew up in Waukegan, lived in Beach Park and settled in Kenosha. Formerly he was a member of Wesley Church in Waukegan and currently belonged to Baptist Tabernacle in Kenosha. Brian worked at Johnson Motors and for 30 years with Commonwealth Edison. He was a Union Steward for Local 15, International Brotherhood of Electrical Workers. An avid Harley rider, Brian was a member of Kenosha HOG Chapter. He also enjoyed hunting, camping, bowling, golfing, target shooting, snowmobiling, skiing, 4-wheeling, and lived a full life of adventure. But most of all, Brian was a hard worker, dedicated Christian, selfless and was loved by all.

Survivors include his wife of 30 years, Lynne; children, Heidi L. Willms of Kenosha, WI and Chad Robert (Fiancé Kari Kammerzelt) Willms of Kenosha, WI; one grandson, Clayton; his father and mother, Charles and Yvonne Willms of Waukegan, IL; and siblings, Dorman Willms of Waukegan, IL, Robin (Dan) Ward of Wadsworth, IL, Kevin Wills of Waukegan, IL and Carla (Mike) Sayre of Lindenhurst, IL. He has joined his sister Buffy Willms Brooks in Glory.

Visitation will be Tuesday, February 23, 2010, from 4:00 until 8:00 p.m. at Wesley Church, 3601 N. Lewis Avenue, Waukegan, IL. Funeral services will be held on Wednesday, February 24th, at 10:30 a.m. at Wesley Church, Harley shirts encouraged. Interment will follow at Mt. Olivet Memorial Park, Zion. In Lieu of flowers, memorial donations to Sky Loge Christian Camp, N4855 County Road Y, Montello, Wisconsin 53949, or C.J.D Foundation, Inc., P.O. Box 5312, Akron, Ohio 44334, have been suggested. Please sign the online guest book at www.congdonfuneralhome.com

Brian is in Glory

Brian went home to be with Jesus at 4:50pm Today, February 19th and we will see him in Glory. In the mean time we are deeply saddened and miss him immensely already.
We are meeting tomorrow to make arrangements and we will be announcing the times and dates of the wake & funeral in the Chicago Tribune, Kenosha News and the Waukegan Paper. Please be in prayer with us about that.

“He heals the broken hearted and he binds up their wounds”
Psalm 147:3

We had the meeting this morning with the Palliative Team. Everybody is in agreement that we are going to start removing Brian from life support. They are going to be making him comfortable until he meets his maker.
Please be in prayer for the family, we are doing this at 9am tomorrow, Feb. 19th. Please pray that the Lord takes Brian as soon as possible. Visitation is open all day and all night TODAY ONLY for anyone who would like to say goodbye to Brian.
Visitation tomorrow is for FAMILY ONLY please. Thank you so much for all your prayers and support during this difficult time.
Earth hath no sorrow that Heaven cannot heal.

Please Pray

Today we had a meeting with Brian's doctors at Froedtert again. We discussed Brian's quality of life as of right now and the extent of his brain damage. The doctors said Brian has suffered an extensive amount of brain damage that it is irreversible. Brian is not getting better and this disease is infecting his brain more and more each day. The damage started with a very small amount on the left side of his brain and now the last MRI we saw it had taken over the whole left side and is on it's way to the right. Also, the seizures have NEVER stopped completely and they are causing more and more damage.
The doctors discussed with us the extent of the brain damage- how it is worsening everyday and with Brian hooked up with a ventilator, feeding tube, IVs, electrodes etc. Brian does not have quality of life.
We are meeting with a team of doctors tomorrow at 10am to discuss making Brian as comfortable as possible when the time comes for him to pass.
PLEASE PRAY that Brian will pass fast and that he does not have to suffer at all.
Thank you so much for all your love and support and continuing prayers! God has truly been blessing Brian and Us with all of you! Thank you

Protein results from Froedtert

We have heard back from the two protein tests that were sent out to Case Western Reserve University. One of the tests is called 14-3-3, when elevated amounts of the 14-3-3 protein are found in the cerebrospinal fluid of a patient it is a detection of CJD (Cruetzfeldt- Jakobd disease) However, this test result came back "ambiguous" or in other words inconclusive.
The other protein test is called the Tau protein test. The result that came back from that test is positive. The amount of protein that is considered to be a positive result in a person was found to be double that amount in Brian's cerebrospinal fluid. Therefore, because of the ambiguous result found in the 14-3-3 protein test and the positive result in the Tau protein test the average between the two that Case Western reported was 51% positive for CJD.
We are still waiting to hear from the UCSF Memory and Aging Center wear they specialize in CJD in what they say to a possible diagnosis in CJD. Thank you so much for all your prayers, comments and support. Brian and all of the family are so lucky to have such a great caring support system with all of you! As usual... we will keep you posted when we know more.

Followers

All of you that selected you are followers, please add your e-mail above where it says "subscribe to Brian Willms by e-mail" Above his picture. This will allow you to receive e-mail updates when there is a new posting. Hopefully it will work ;-)
Thank you again for all your prayers and continued support!

Jeremiah 29:11-14

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart. I will be found by you," declares the Lord, "and will bring you back from captivity. I will gather you from all the nations and places where I have banished you," declares the Lord, "and will bring you back to the place from which I carried you into exile."

California

We have sent medical records to University of California to Dr. Michael Geschwind. MD PhD who is a specialist in CJD and are awaiting to hear from them also. Once again, we will keep you posted! :-) thank you again for all your support and love

Still waiting...

This Blog is going to be used to update friends and family of Brian Willms. Brian is at Froedtert Hospital in Milwaukee. So far all test results have come back negative on Cancer, Infection, Metal intoxication etc. There has been a total of 75 tests that have been done for The lab results that we are still waiting on is for a disease called CJD (Creutzfeldt-Jakob Disease) http://www.ninds.nih.gov/disorders/cjd/detail_cjd.htm This website has a lot of information on the disease. The tests that we are waiting for are 2 protein test and the results will not be in until Friday or MONDAY

Brian is going to be in the ICU under a medicated coma to relax his brain and WILL NOT be able to receive any visitors that are not family related due the volume limit of people.

Please check back for further information.